tag:blogger.com,1999:blog-76129308439013992432024-03-14T05:51:16.184+00:00MaireadMaireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.comBlogger118125tag:blogger.com,1999:blog-7612930843901399243.post-84782972350389785612013-05-02T13:26:00.002+01:002013-05-02T13:26:26.646+01:00It's been a while!Well hello there! I have been informed on several occasions (by one person) that I have neglected my poor wee blog. I kinda feel that I don't really have much to say now?! But anyway, to keep all my avid readers (i.e. Dad) happy, here we go!<br />
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My latest scan was at the beginning of March and everything was grand. Appointments have been decreased to every three months but I don't need to go back to London until December - hurrah! I will be very pleased if I never have to see the inside of Charing Cross Hospital again, but that won't be happening any time soon. Energy wise, I have definitely improved but I know I'm not back to my old levels. I still get tired very easily and if I don't have a good night's sleep (at least 8 hours), it makes my hands cramp constantly the next day and have pins and needles in my legs. It's all rather odd. This means that I am now SO precious over my sleep (which would be great if I slept well) as I know if I get a dreadful sleep, it will ruin the next day. Other than that, my tinnitus is still super annoying but I just have to suck it up and think it could be worse.<br />
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OK, that's the boring stuff over with, what else shall I fill you in with..? It has been quite a while so when I think about it, I have done rather a lot! In September I held a few Coffee Mornings for Macmillan and absolutely loved it. We had one at church and then another in Hillhead Bookclub, both with great turnouts! This was taken at the end of the night - Ruth and I were knackered from running about all day!<br />
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The next few snaps are a combination of events and fun times before the end of last year - mainly to show my hair progress!<br />
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Once my hair had grown to a mullet, I decided it was time for the chop! The hairdresser actually took quite a bit off, but I did like it - even though I felt like the haircut made me look middle aged.<br />
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We had a lovely Christmas and New Year with all the family filled with plenty games of Risk and Shloer - standard. </div>
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The past few months have again been filled with birthdays, hen do's, weddings and general merriment. My favourite kind of thing.<br />
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Oh yeah, here's that time I turned up at a wedding in EXACTLY the same colour dress as the bridesmaids.. Whoops.<br />
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One highlight of the past few months was LES MIS. I may be slightly obsessed which was apparent in the birthday cake that was made for me..</div>
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I realise this has just become a bit of an erratic photo diary but OH WELL. As you can see from the above, I definitely have been able to do more. I even have enough energy to stand at gigs - amazing huh? Using your legs TO STAND. This was a totally mental concept to me not that long ago - if you see me smiling contently while standing, it's because this is still a BIG DEAL. Other than the above, I've also done some volunteering and looking to get back into work again. My 'vague' plan is to continue volunteering/applying for internships until the end of Summer and try and get back to working then. It kinda terrifies me but I think I am capable and a lot of the fear is to do with my confidence. I know that the more I do, the more my confidence will grow, so, I just need to push myself and try! I am also doing an Open University course which I'm really enjoying. The next topic is all about the Suffragettes - totally up my street! I'm quite surprised at how much I really like studying again, maybe it's because there's no pressure attached to it?! </div>
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On Monday I was also back on the TCT Ward for the first time in ages to meet Aileen McLeod MSP. It felt very strange being back. When I walked in I even forgot what floor the ward was on - I think that's a good sign. It was great to meet her - she was so lovely and interested in the work the TCT do. She also told us that she had suffered from cancer as a teenager so really understands the difficulties that young people with cancer face. The TCT are currently working on ensuring that all young people throughout Scotland get the same level of care, regardless of where they live. The work the TCT do is essential and hopefully I'll be able to help out more in the future. </div>
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Well, I think that'll do for now - I shall try to update a bit more frequently but let's be honest here, I probably won't. BYE.</div>
Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com2tag:blogger.com,1999:blog-7612930843901399243.post-37854861582182062662012-09-10T17:48:00.000+01:002012-09-10T17:48:38.009+01:00"Well, that looks fantastic!"Once again, I have left it a very long time to update this old thing. I feel I don't really have much to say anymore! So, I'll just pop up a wee health/life update on my little corner of the internet.<br />
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So, last Thursday evening, Mum and I made the journey once again to London. Unfortunately, this was not for Fashion's Night Out or the Paralympics, but for an appointment with the prof on Friday Morning. We arrived at Daphne's (who once again put up with us!) rather late so went straight to bed. My MRI was at 9.45 so it was a pretty early morning for us! After that, we headed over to clinic and were seen early (THIS NEVER HAPPENS) which was good. We had a little catch up and I was told off for doing too much.. Whoopsie. The prof said he thinks my little 'episodes' are probably migraine related but also that they seem to happen when I'm overtired. So, I have been told once more not to push myself - I will be taking things easy these next few weeks! He then looked up my MRI and had a look through. He said it looked fantastic and there was no trace of the cancer - what a relief! After he said that, Mum and I both realised how nervous we'd been up to that point. When I'm nervous, I feel incredibly nauseous and can't eat. The second he said that, the sickness feeling passed. I'm not sure why I was so worked up about this scan - I guess every check up is nerve-wracking, so it is great to hear everything looks good. My blood levels are still a bit all over the place so we're going to keep a close eye on them. Dark chocolate is supposed to help Magnesium levels so I've been instructed to eat a lot of that.. What a shame. We had a long catch up and then Mum and I were free! I absolutely LOVE walking out of Charing Cross Hospital in a good mood - it doesn't have many happy memories attached to it. We're not due back down until March but I will still have my blood checked regularly and have appointments at The Beatson. So to celebrate, we headed into Chinatown for some dim sum and then went to see Anna Karenina at the cinema in Leicester Square. The cinema is so nice inside but it was £18 a ticket!<br />
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After this, we headed into town to meet my good chum Martin for dinner. We ended up in Covent Garden drinking prosecco in a lovely rooftop bar - perfect! The next day we met Cousin Kate for brunch and headed back to Daphne's to get ready for Matthew's Friends Ball (http://www.matthewsfriends.org/). The charity is raising money and awareness for children with epilepsy to try a different diet - it was such an amazing and inspirational night hearing about the charity and the amazing work they do. We were at a table with some of Mum and Dad's friends from Cole Abbey, so Mum loved the catching up!<br />
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</div><div class="separator" style="clear: both; text-align: left;">The past wee while hasn't been too busy but enough for me to feel shattered all the time! My energy levels are still RUBBISH but fingers crossed they'll pick up soon - they're taking their sweet time. Here are some pictures of recent events.. First up we have Sarah's wedding! It was such an amazing day, Sarah was such a gorgeous bride - DUH. We stayed at Granny & Grandpa's the night before then Alice's lovely folks put up with us on the night of the wedding - thanks Sandra! </div><div class="separator" style="clear: both; text-align: center;"></div><br />
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William laughing at my wasp sting..<br />
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Showing the dance floor our Beyonce moves.<br />
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This wasn't actually posed (honest) - it's just to show how long my hair is! PONYTAIL TIME!<br />
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Beautiful Mrs McNeish!<br />
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Next up is just a bundle of random photo's from the last month or so.. First up, I absolutely LOVED the Olympics - which is bizarre as I do not enjoy watching or participating in sports.. Oh well, it was awesome. Ruth and Ally held an opening ceremony night, so obviously we had cake.<br />
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</div>We had a wonderful holiday club in Coatbridge with lots of amazing kids - I've stolen this snap off you Jane, I hope you don't mind!<br />
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My lovely cousin Esther turned 21, so she held a 20s themed party! Any excuse to get dressed up :)<br />
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I also had a day at the fringe with my lovely Music Girls (not sure why we still call each other this - we left uni 5 years ago!) - it was great fun.<br />
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Finally, we have a picture of myself in the local newspaper! I'm currently doing some volunteering for Macmillan and trying to get folk to sign up for the World's Biggest Coffee Morning at the end of the month! I'm holding one in Coatbridge and also one at Hillhead Bookclub - it should be fun! Also, the newspaper spelt Macleod wrong..<br />
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Today I have done absolutely nothing and I still feel shattered. I have come down with a rubbish cold and can't speak at all - I'm guessing everyone in the house is rather thankful about this. I hope it comes back as I have plans this week - ANNOYING. I shall try not to leave it as long before my next update. I say that but any money it's longer. Oh well, laters!Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com3tag:blogger.com,1999:blog-7612930843901399243.post-59174375059579863942012-07-22T15:52:00.000+01:002012-07-22T15:52:23.273+01:00Pop Pop!Afternoon all! I thought I would 'pop' up a wee update on the blog for y'all. I am currently in bed with some peppermint tea having a very chilled Sunday afternoon (actually, I have to lie down as I ate so much at lunch). I have had a rather busy few weeks so I will fill you all in!<br />
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First up (will get health rubbish out of the way), I've been feeling rather rotten. I have had some weird fainting/dizzy/light-headedness spells and they don't seem to be easing up. My magnesium is pretty low again so it might be in relation to that. Basically, I'm constantly feeling light headed and at times my right arm goes all tingly and I feel like I'm about to faint - not particularly pleasant. I've also had the kaleidescope eye thing again - this in particular freaked me out as it reminded me of what I felt like during chemo. I'm going to call the docs tomorrow to see if she has any suggestions on how to get rid of this. I'm feeling rather restricted again as I'm paranoid to go out and do things as I do not fancy fainting alone in Topshop! That would be pretty awkward. It's really frustrating as I was feeling good and desperate to do more things - I know I'm not back to square one, but it is annoying.<br />
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Anywho, enough of that. I've had a lovely time this past month with weddings, hen do's and a trip to Keswick! First up, we had Cat and Paul's wedding. It was such a wonderful day and I was so happy to be a part of it. Cat has been one of our closest friends for so long and I felt so emotional watching her walk down the aisle! ML's speech was obviously a highlight too.<br />
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I have more photo's to get off Dad's camera so I will do that soon! On the wedding theme, last weekend we had Sarah's hen and it was AWESOME. A surprise party on the Friday (with lots of Sarah masks), a dance class on the Sat (which my legs have just recovered from), then dinner, drinks and dancing on Saturday night - a wonderful weekend! Well done to the bridesmaids for organising an amazing time for all!<br />
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</div>This last week, Mum, Dad, Granny and I went to Keswick - it was really nice to get away for a few days and see the family. I felt pretty ropey a lot of the time so didn't do much but a change of scene is always fun. Dad and I also managed to fit a trip to the Pencil Museum.. We lasted ten minutes. I don't think I'll be going back.<br />
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This post feels like it's been a jumble of pictures and rambling - so, same old huh? I shall report back soon with something interesting. Maybe.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com2tag:blogger.com,1999:blog-7612930843901399243.post-70824734968775349252012-06-27T15:19:00.000+01:002012-06-27T15:19:52.029+01:00A wee update<div class="separator" style="clear: both; text-align: left;">Good afternoon all! I thought I should post a little catch up blog to let you all know how I got on in London! I went with my friend Amy who had to put up with a very nervous Mairead all day on Wednesday.. I couldn't even eat! On Thursday morning I was still feeling a bit sick but not as stressed.</div><br />
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The event wasn't until 1pm but we arrived early so I could have a run through of my speech. After that I felt grand! Everyone was so supportive and kind so it really put my at ease. Amy managed to sneak a little snap of my run through..<br />
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I actually really enjoyed the speech and felt so honoured to be invited. Lots of people came to speak to me after and were really complimentary - so that was nice! There's more information about the event here... http://www.teenagecancertrust.org/what-we-do/health-professionals/blueprint-of-care/<br />
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Afterwards, Lord McConnell took us on a tour of the House Of Lords - it was great! He has been so supportive of the Teenage Cancer Trust and was a very good tour guide. Here's a picture of me next to Queen Victoria's Throne.. Oooh!<br />
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Amy and I managed to fit in a trip to see Matilda, dinner and drinks with friends and visits to the National History Museum and the V&A! Currently, the V&A have an exhibition of ballgowns on (swooon), so that was our first stop. Unfortunately we weren't allowed to take any pictures but I can confirm that the dresses were AMAZING. One plus of having a disabled badge is that I get a reduced rate for expensive exhibitions.. I have definitely taken advantage of that! I was so knackered after the trip so went to bed as soon as I got in on Friday!<br />
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The past few weeks have been rather busy with birthdays, meetings, hen do's and the like. All good fun really! I had a bone scan on Friday at 9am (GAAAH) which was OK too. I was expecting it to be like an MRI but it was fine. It was also a good excuse to get a nice West End breakfast after.<br />
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On Saturday, Rona, Teenie, ML and I ventured to Aberfeldy for Cat's hen do - it was SO much fun. ML organised the whole day and did an amazing job. I am now so unbelievably excited for Cat's wedding on Saturday. It is going to be a wonderful day. (I stole one of your pictures Judy - hope you don't mind!)<br />
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Here are a few other pictures of recent times. First up, myself and ML looking very cheery.<br />
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</div><div class="separator" style="clear: both; text-align: left;">My wonderful Music Girls who always put a (rather large) smile on my face.</div><div class="separator" style="clear: both; text-align: center;"><br />
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We had a lovely cousin fuelled few days for Grace's birthday a few weeks ago. It was so nice to spend some time with them all. Also, as Eurovision was on, it gave Teenie and I an excuse to dress up as Jedward!<br />
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</div>We had an 'ironic' Jubilee Party a few weeks ago - it was ace! We ate a lot of cake..<br />
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</div><div class="separator" style="clear: both; text-align: left;">This first picture is a few weeks old but I love it. The kids discovered Instagram on my phone and seemed to enjoy it. It's James' birthday today so they came round to drop off a card for James and help eat the amazing cake Mum and Teenie created! </div><div class="separator" style="clear: both; text-align: center;"><br />
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I can't quite believe James is 20 - crazy. His back is still pretty bad but will hopefully improve soon as he is getting rather intense physio every week. So, it's a rather miserable birthday for him so his 21st next year will have to be immense!<br />
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Healthwise, I'm going grand. Blood levels are still a bit low but not worrying. My energy levels are still a bit rubbish but I know it's something I need to build on. After the crazy weekend, I have felt absolutely shattered! I'm still aware that I need to conserve my energy and that it will take a long time to recover. As I've said before, it's a gradual process but I can definitely see improvement - even if it is taking a while!<br />
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I'm really looking forward to the Summer - weddings, hen do's, a trip to Keswick, the induction at Coatbridge (YAY) and some voluntary work for Macmillan. I'm excited to actually 'have' a Summer so I want to try and pack a lot of things in. I hope everyone is having a cheery Wednesday!<br />
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<span id="goog_897718363"></span><span id="goog_897718364"></span>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com6tag:blogger.com,1999:blog-7612930843901399243.post-16220293839543036572012-06-13T12:35:00.002+01:002012-06-13T12:42:06.614+01:00Young Voices<span style="font-family: Arial, Helvetica, sans-serif;">Hello all. I hope everyone is having a lovely day! At the moment I am feeling rather sick and nervous.. I'm going to London this afternoon as tomorrow I'm speaking at a Teenage Cancer Trust event in Westminster (EEEEEK). I'm really excited but also TERRIFIED. I've to speak for about five minutes all about the Young Voices campaign that I contributed to last year. I thought I would share with you all what I'm going to say. So, here goes...</span><br />
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<b id="internal-source-marker_0.8172391669359058" style="font-weight: normal;"><span style="font-family: Times, 'Times New Roman', serif;"><span style="vertical-align: baseline; white-space: pre-wrap;">Hello. My name is Mairead Macleod. I am 26 years old and come from Uddingston, just outside of Glasgow. I wanted to contribute towards the Young Voices report as I thought it was very important for the Government to know the difficulties that young people with cancer face. </span></span></b><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">I was diagnosed with a non gestational choriocarcinoma in May 2010. In hindsight, it is clear that I had typical symptoms of a young person with cancer - tiredness, weight loss, nausea, loss of appetite etc. I had been to my GP on several occasions and just been fobbed off. My Mum, who is also a GP, then stepped in and forced my local hospital to scan me. After a number of scans, a tumour was found in my bowel with mets on my liver. I had my first operation in Wishaw and was then sent to London for further treatment. I had four months of constant chemotherapy, another operation, two rounds of high dose chemo and one final operation in January 2012. </span></b></span><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">Firstly, I would like to focus upon the delays in my diagnosis. It took two months of too-ing and fro-ing to my GP surgery to finally be sent to the hospital. When I was diagnosed, I was told that my tumour was very fast growing so we are lucky we didn’t leave it any longer. On all the occasions I went to my GP, I was made to feel like a nuisance and was sent away with medication. From reading of other peoples experiences in the Young Voices campaign, it is clear that this is very frequent and unfortunately for some people, diagnosis is too late. I completely appreciate that for a GP a young person with cancer is very rare, but I don’t think this is an excuse for not responding quickly enough to the obvious signs. </span></b></span><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">In total, I have been in five different hospitals and each have been very different. I was initially sent to London for treatment and was very lucky when the concept of shared care between London and The Beatson, which is in Glasgow, was introduced. I was not on a Teenage Cancer Trust ward whilst I was in London, and I noticed a huge difference - mainly in staffing levels. One night, the lady opposite me was struggling to breathe and I had to run around the ward attached to my chemo, looking for a nurse to help her. I was in unfamiliar surroundings and had no knowledge of cancer or chemo. There were only two nurses on for the whole ward that night - it made me feel even more frightened. </span></b></span><br />
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<b style="font-family: Times, 'Times New Roman', serif; font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">It was a huge contrast when I was in the Beatson, on a TCT ward. On my first night, once my Mum left, a nurse made time to bring me a cup of tea and have a chat with me. I felt so welcomed and it really put me at ease. It was the little things like this that I really appreciated. </span></b><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">In my room I had a TV, DVD player, computer with internet access, lots of storage space and my own bathroom. I was also next door to the ‘Chill Out Zone’ which had access to a pool table, sky TV, even more computers, and most importantly - a kitchen with a toaster, kettle and microwave! I know a lot of focus is made on the ‘things’ TCT give to patients, all of which are very important. However, for me, it was the support of my specialist nurse Julie that was incredible. She introduced herself to me on the first day I came in and visited constantly. She dealt with all the organisational aspects that come along with treatment that I would never have considered. She also provided support for myself and my family. It was great to speak to somebody who understood everything I was feeling and could answer all my stupid questions. It is clear from reading the Young Voices campaign, that being on a TCT ward dramatically improves young people’s experience in hospital. It is pretty miserable being away from friends and family yet the TCT tries to keep surroundings as normal as possible in an abnormal situation.</span></b></span><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">After my treatment in the Beatson, I was sent to London for my big operation. Once again, I was not on a TCT ward and it was very strange not being in one! Visiting hours were very strict and infrequent and it was horrible being in so much pain and not being around my family. For my high dose chemo, I was at another hospital. As I was in over Christmas, staffing levels were very low and my Mum and sister did most things for me - they dressed my hickman line, changed my sheets, help me wash etc. I completely appreciate that nurses are very busy, particularly in a ward where there were a lot of very sick people. However, from being on a TCT ward and then a general ward, the difference in the amount of nurses is very clear. </span></b></span><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">One thing has remained the same throughout my hospital visits - The food. I know it’s a terrible cliche to say that hospital food isn’t great - but it’s the truth! It probably sounds very odd to say, but whenever I left hospital, I was craving a salad! When I was getting my high dose treatment, I saw a nutritionist most days. At that point I had terrible mouth ulcers and nausea so was struggling to eat anything. It was incredibly difficult to try and eat well with a limited menu filled with stodgy food when I wasn’t wanting to eat a thing! </span></b></span><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">Through the TCT, I have also made some great friends. When I was first diagnosed, I presumed I was the only person in the world to be going through this - even though I was constantly surrounded by friends and family, my situation felt very isolating and I wanted to meet someone going through a similar experience. Occasionally, I found it difficult to say exactly how I was feeling around my closest friends and family - I felt if I vocalised these feelings, it would only make things more difficult for them. However, with the friends I have made through the TCT, I’ve found that I can be as open and honest as I want as they’ve been in that situation too. </span></b></span><br />
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<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">Furthermore, I have had wonderful experiences through the TCT. I have been off work for over two years now, so evidently have a lot of free time! However, I have been offered tickets to Music Festivals, events, Scottish Parliament and now here! I have also held my own fundraising events which have raised money for the charity.</span></b></span><br />
<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="white-space: pre-wrap;"> </span></b></span><br />
<span style="font-family: Times, 'Times New Roman', serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">It is over 2 years since I was diagnosed and I had my last operation in January. I feel very privileged to be involved in the Young Voices campaign and I hope it gives those who read it an insight into the trials that young people with cancer face. I’d never really thought about cancer prior to my diagnosis - I guess I just thought you’d lose your hair! Unfortunately now, I know there is a lot more to it. </span></b></span><br />
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<span style="font-family: Arial, Helvetica, sans-serif;"><b style="font-weight: normal;"><span style="vertical-align: baseline; white-space: pre-wrap;">If anyone would like to know more about the Young Voices campaign, just have a look here... </span></b><span style="white-space: pre-wrap;">http://www.teenagecancertrust.org/workspace/documents/Young-Voices-report.pdf</span></span><br />
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<span style="white-space: pre-wrap;"><span style="font-family: Arial, Helvetica, sans-serif;">Well, I best be off and finish packing. I'm so scared that I'm going to forget something! I shall report back with how everything goes. Laters! </span></span>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com5tag:blogger.com,1999:blog-7612930843901399243.post-27686964727040481742012-05-22T00:15:00.000+01:002012-05-22T00:18:17.141+01:00Two YearsSo, obviously the title implies that this post relates to something to do with 'two years'. Well, congratulations if you worked out that code - that is most definitely correct! Today is basically two years since I was diagnosed. May 21st 2010. I do enjoy birthdays, anniversaries and Christmasses etc but I really don't want to make this into a 'thing' to 'celebrate'. However, it's difficult to get the 'date' out of your mind when it is so firmly there. It is so strange to think that this time two years ago I (well my family and close friends!) had started telling everyone I know what was going on. It's only recently friends have told me how they reacted at the time and it is so odd hearing about it from another person. As this date will forever more have a bit of a CRAP quality about it, maybe I should make up a holiday? Like, National Clean Your Car Day or National Make Pasta From Scratch Day - as in dull things, people say they will do and never will? Hmmm.. That probably won't take off so let's scrap that idea.<br />
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So, I'll just be self indulgent for a few more minutes and say I want to thank each and every person who has helped me, talked to me, been there for me, acted normal around me, invited me to do something FUN, made me a cake, talked about trashy magazines, brought percy pigs, provided me with a new Andrew Lloyd Webber piano book, got their class to make me an Annual, made a mash up of John Torode's face, those who introduced me to Community/Mad Men/ Greys Anatomy and any other show that helped me through the DULL DULL DULLNESS of hospital stays. I obviously have so many more people to thank but anyone who prayed, sent a card, message or even a lasagne - I just want to say Thank You.<br />
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I feel now I should have some knowledge in how to speak to someone going through a similar thing to me - obviously practical things like, don't wear long sleeves in hospital (it's a nightmare with getting blood/venflons), take lots of moisturiser/lip balm/hand cream (the air con makes you feel very dry), take quite a few pairs of pjs (one night stay will almost definitely be more) and make sure you have enough entertainment so you can drown out the noise of the constant beeps or chitter chatter. Larger headphones help with this venture.<br />
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I think if anything, I've learnt that cancer patients want their normality. For example, it's horrible when your morning routine is taken away from you and you are woken at 7am with a slice of cold toast and some really disgusting coffee. I also wanted people to be normal with me. I can understand why it is an uncomfortable situation but the patient has never changed - I had never changed. I'd like to think I kept my sense of humour throughout (debatable I'm sure), my need to change my nail polish every second day (difficult, as I was normally told off for this) and my love for smelly cheese had definitely not diminished - well it did when I was told not to eat them. Humph. Back on the Cheese Train now though! Hurrah.<br />
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Two years down the line.. Hmmm I'm not sure if I've changed. At the moment my Dad would disagree and probably say, I'm a 'lady of leisure' - which I guess is partly true! I'm giving myself to the summer to have a proper BRAINSTORM about this silly old life of mine. I'm sure something will strike me soon.<br />
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Obvs, I don't want to be banging on about cancer all my life - it already feels like a long time ago. However, if anyone wants to talk to me about it, that's cool! I hope folk don't feel uncomfortable if I'm too open with it - sometimes I should learn to shut up.<br />
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Right, I think I should round up this (rather long!) blog. I had no idea where I was going there so may continue another soon. Night y'all.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-21611921644392267292012-05-03T15:16:00.000+01:002012-05-03T15:19:31.174+01:00London LolzThis post has been a long time coming - I really have absolutely no excuse at all. Basically, I'm just incredibly lazy. I kinda miss my little corner of the internet so thought I would post a wee update for y'all.<br />
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Since my last post, I've managed to fit in two trips to London - one to visit the prof and one to go to a Teenage Cancer Trust event at the Royal Albert Hall. Everything was grand with the prof - all scans were clear and no scares like the last time. Mum and I had some prosecco and macarons to celebrate and met up with some London friends for dinner. Any excuse huh?!<br />
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Well, now I'm basically going to BANG ON about how awesome the Royal Albert Hall was! I am a HUGE fan of the theatre but had never been to the RAH so I was so excited to be invited by the Teenage Cancer Trust. It was an all expenses paid trip (holla) so that was pretty ace! We were at the RAH all day with other folk from the charity - we got involved in a Music Workshop, had a tour of the hall, a champagne reception, a lovely dinner, amazing goodie bags, wonderful seats and then got to meet all the comedians! Here are some snaps for y'all.<br />
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We had some time on Tuesday for tourirsty stuff so went to the big Topshop, an Italian for lunch then hit up Liberty's - standard. It was a wonderful trip and it was great to go to London and not have to go to hospital!<br />
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The past couple of weeks have been filled with birthdays and fun happenings - April always seems to be very busy! As of this, I seem to have contracted some sort of awful cough. It's starting to disappear a bit thanks to some antibiotics. In the words of David Cameron, my body was telling me to, 'calm down dear'.<br />
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Here are some pictures to prove why I am so run down.. THANKS FRIENDS FOR BEING SO FUN.<br />
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I have also been involved in a few other Teenage Cancer Trust events recently. A few weeks ago, I attended the Managed Service Network Launch. At the event, Nicola Sturgeon announced that the Scottish Government will back age appropriate care for young people going through cancer. Great news! A lot of work had gone into this and we were all very happy with the result. I have also been invited to a parliamentary event in Westminster in June which I am rather excited about. I think I've got to say a few words so I am already pretty nervous. More about that when it happens though!<br />
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Aside from all the above, I am now at the stage where I really need to think about what to do... With my life... I have officially left my old job (I'll miss you guys!) and I could not have asked for a more supportive and caring group of colleagues. However, it has now left me in a quandary! By now I feel I should have come to some sort of conclusion/had an epiphany yet nothing has fallen from the sky.. Hmm.. I have a few more things lined up with TCT/Macmillan over the next few months so I think I'll see where they lead to. It's all rather terrifying but I'm trying to look at what I can benefit from this down time - I'm sure there will be something out there for me. However, any suggestions - fire them my way!<br />
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It's coming up to two years since my diagnosis - I don't particularly want to dwell on it and I really don't want it to define me. I'm totally cool if it comes up in conversation, or something wants to ask me about it but I am so happy that it's not the only thing I have to talk about anymore.<br />
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I promise I won't leave it so long til my next update!<br />
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PS - thoughts on my hair? I'm still not convinced I like it. (That may be fishing for compliments - unashamedly).Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com5tag:blogger.com,1999:blog-7612930843901399243.post-17254049772455621972012-02-29T12:21:00.000+00:002012-02-29T12:21:58.724+00:00Hair TwinOh hello there bloggy type pals. I hope you are all well. It has come to my attention that I now have a hair twin. Well, I have had hair twins for a while I guess. When I was bald, I was told I looked like Harry Hill, the guy from Eastenders, Voldemort (thanks Teenie) and many other men. How kind to be compared to such attractive guys.. At one point, with my skin head, I looked like various different neds. I have also closely resembled Mr Zelner from Friends. However, there have been none so similar as... Wait for it... Dan Humphrey from Gossip Girl! 'Who is that?', I hear you cry! Well, you are about to see the shocking similarity..<br />
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Yes, uncanny isn't it? Yeah? YEAH?! I know you're saying, 'No, not at all'. Well, I am sorry about this. I am very lazy with google images and totally rubbish with computery things so this is probably the fourth picture from google and a shoddy paint job. So basically, go and google him OK? This is now my reason for watching Gossip Girl - to compare my hair with one of the hunks from the show. If anyone can think of any WOMEN who have the same hair as me, please let me know. I feel like I'm overdosing on mascara, perfume and frilly tops so people are sure that I am female.<br />
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In other news, I am now 26. Hurrah. NOT. Honestly, I don't really care THAT much. The only downside for me is that I can't apply for another Young Persons Railcard. Well, that and the fact that I am now the dreaded 'mid twenties verging on late twenties' stage. That's not good. I had a very nice birthday actually. I asked some of my girly pals to come round dressed in their best black dress and crazy wigs for some karaoke and champagne - everyone looked marvellous! Here is the proof..<br />
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I, of course, went for a blue wig. Why break the norm eh?!<br />
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Tomorrow I am travelling back down to London for a check up on Friday. I'm hoping after this one they will become less frequent. I'm not expecting him to say too much but it's always good to check in I guess. However, I seem to have caught a cold from one of the million germs that are kicking about. I feel OK but sound like a very hoarse man (matching the hair eh?).<br />
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I am definitely starting to feel a bit stronger - no cartwheels just yet though! I'll leave them a few weeks.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com5tag:blogger.com,1999:blog-7612930843901399243.post-5513007920908097582012-02-10T15:36:00.002+00:002012-02-11T12:17:02.574+00:00Thank you Dr LiThis will only be a brief post (I promise) as I just wanted to share with you all something I have found out this week. My Dad is currently reading a book about the history of cancer (sounds fun eh?!) (<em>The Emperor of all Maladies by Siddhartha Mukherjee)</em> and he thought I would find one chapter very interesting.. I did!<br />
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We have found out about a doctor in the late 50s, early 60s (can't quite remember) who discovered the first ever chemo cure for adult cancer while treating a patient with a choriocarcinoma. The patient had a high hcg level and the doctor (Dr Li) realised very quickly that if he administered methotrexate (a chemotherapy drug) the tumours declined. However, he kept on giving the drug so the hcg hormone level would gradually decrease. The hcg was what they call a tumour marker. He continued the treatment until the hcg level hit normal and the patient was cured. Yet he was accused of experimenting on patients and sacked! Today though this has been hailed as the first ever cure of adult cancer through chemotherapy. <br />
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I have mentioned before how odd/weird/random/out there my tumour was, yet it seemed to behave like a germ cell tumour (ie a choriocarcinoma). Chorio's are normally in the womb and associated with a pregnancy - my tumour was incredibly awkward and had nothing to do with this and showed up in my bowel, yet still producing a high hcg. I still find the whole thing rather confusing.<br />
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Anywho, all I wanted to say was that I found this rather interesting and I guess I have a lot to thank Dr Li for. What a smart guy! (Also, how on EARTH do you figure something like that out?! BLOWS MY MIND).<br />
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Other than the above, I do not have much else to report. The staples are out of my tummy and I have another scar to add to my collection. I also turn 26 tomorrow and am already sick of 'old lady' jokes. How on earth am I this old?!Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-11288799291451560302012-01-24T11:02:00.001+00:002012-01-24T11:10:59.663+00:00One week ago today..... I was nervously awaiting my trip to theatre. Generally, I felt OK (think I got my freak out, out of my system a few days previous) but I was still terrified. It had been a bit of a manic few days prior to this so I shall fill you in.<br />
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On Saturday, we decided to go to the cinema (to see The Artist, which I did enjoy but think it's been 'over-hyped') and once we left I had a rather sore stomach. I decided to tackle this with peppermint tea and paracetamol but it would not budge. After a few hours of debating whether to go to hospital, we packed up some stuff and went to Wishaw. I was expecting the A & E department to be full of Saturday night drunkards but it was empty. However, it still took forever to be seen and a very cautious junior doctor only giving me 2.5mg of morphine.. After explaining countless times that this would do nothing and I know my own levels of pain blah blah blah, I got sent to the ward. This was a good move as I got all the morphine I wanted there! Hurrah! This meant no sleep at all due to all the itching from the morphine.. I chose no sleep over pain. By Monday morning, I was still pretty sore and hadn't eaten anything (which is unusual as this pain normally goes within 6 hours) so they decided to CT scan me. I popped down for one and when the results came back it appeared that I would need a larger operation. On Monday morning I was asked to decide if I wanted to go ahead with the op as planned OR to have a larger one which would involve opening me up again (nooooooo) and snipping away at any adhesions they found. I made the decision rather quickly to go ahead with this larger operation as I was told it was inevitable and it would need to happen anyway. So, Monday passed with me even MORE nervous about the next day. With the original op I was only going to be under anaesthetic for an hour but with this new proposal it was expected to be quite a few hours. In the evening, my surgeon visited me and said that she had reviewed my scan with a radiologist who told her I didn't need this larger op.. Talk about messing with your head! So, she left me saying she wanted to go ahead with the straight forward op and see what happens.<br />
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As you probably all know, I am not good AT ALL with things being changed last minute and always need time to get my head around a situation. On Monday I realised pretty quickly that I had to try to 'go with the flow' which I found very difficult indeed.<br />
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Now.. I have a rather embarrassing admission.. I own a pair of 'lucky pants'. I know, I know, this is RIDICULOUS and I have no idea why but I do OK! I am in no way superstitious, I don't believe in luck or jinxes, I think starsigns are rubbish etc but I still have lucky pants.. Don't worry, I don't wear them for all of my hospital admissions (one pair of pants for a month stay? No no), just the big things like scans or big check ups. I stupidly told the lovely nurse who was taking me up for my Op and she proceeded to tell EVERYBODY. She made sure the anaesthetist put them in a labelled bag for me and when I came back to the ward she wanted me to show the other nurses... I realise I am now telling all of you but that's only because she let my secret out of the bag. I now wish they were nice ones. Unfortunately they're very faded flowery ones. CRINGE.<br />
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When I came out of the op (after realising my pants were safe), I was told everything went well and my surgeon found an adhesion right at the opening so managed to snip it away without opening me up any further. Here's hoping that's the end of all my stomach pain! I had a morphine pump so was itching away like crazy and talking total jibberish. Mum took a picture to send to James as he wasn't able to come. Not my most flattering angle but oh well. I was attached to a million things - not fun when you need the bathroom.<br />
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I was transferred to a different ward (one down from high dependency) where the nurses were amazing. They were so lovely, kind, caring and made me feel like I was never asking a stupid question (even though I totally was). The day after, so many nurses, doctors, hospital folk passed and popped in to say 'hello'. It made me realise how many people I now know in the hospital.. It's A LOT! The nurse who was looking after me was great and made a comment that they don't generally see people who have done so well and come out of the other end of treatment - she then said that I touched a lot of peoples hearts.. AWWWWWWW. Totally gushy but I thought it was incredibly sweet of her.<br />
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After this wonderful ward I was transferred to a ward that I HATED. The second we walked in I felt really uncomfortable. It was a huge room with high ceilings and six beds. I remember going to sleep and feeling really unsettled as it reminded me of somewhere but couldn't think where. Mum made the comparison with Charing Cross Hospital and the ward I was originally in there. Bingo - that was it. It wasn't exactly the same but felt so familiar. I think, subconsciously, it brought back how much I hated it there, how scared I was and how terrifying the whole situation was. I was completely miserable, sore (morphine had been stopped.. waaaa), tired (hadn't slept for days) and surrounded by women discussing how many great grandchildren they had. Normally I love this kind of chat but I was just angry at everything. Mum phoned my surgeon to say I was a bit down and she said, 'if you think Mairead looks OK, take her home!'. Mum didn't hesitate so called me and told me to pack - hurrah! This really perked me up so then I started blethering to all the old ladies (who were all lovely) and getting everything gathered up. One of the awful things about Wishaw is the strict visiting hours - I am NOT used to this and hate spending so much time by myself. So, I had to wait until 3pm to be picked up and then off home we went! I was only out of surgery for two days and in quite a bit of pain but would much rather have my recovery on the couch watching Masterchef.<br />
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So, to end this very long post, I am now home and very happy. I tried to refrain from getting sentimental and mushy when I left/got home but I know everyone's hoping that was my last hospital admission and I will only ever need to go for check ups again. It feels completely mental. It's been 20 months since I was diagnosed and probably about 2 years ago since I was symptomatic. I'm not entirely sure what's next but I really hope it doesn't involve hospitals.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com6tag:blogger.com,1999:blog-7612930843901399243.post-48181849384198226782012-01-08T18:02:00.001+00:002012-01-08T18:07:28.901+00:00Should old acquaintance be forgot..I think it's probably fair to say, that most people who say, 'I JUST LOVE singing Auld Lang Syne' don't have a clue what the words are. I am OK with admitting that I am one of those people. However, this blog post title is one line that I do know - hurrah! I have been putting off writing a post for ages - I am becoming very lazy I think - but as time has gone on, I have even more to write.. Oh well, you guys are in for a treat then!<br />
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</div><div>As I didn't go to London a few weeks ago, I got my MRI in Wishaw instead. The results from that MRI were good and there is no sign of cancer - phew. I felt totally fine going for the MRI but when it came to the results I started to get a bit nervous. All good though! Unfortunately, I ended up in hospital a few days before New Year with that annoying stomach pain again. As it's happened a few times, I can now tell when it's starting so we rushed straight to Wishaw. I quickly got a fluid drip and a few shots of morphine (thanks to a letter from my wonderful surgeon). That really helped the pain but they kept me in overnight anyway. I was absolutely RAGING the next day as they would not let me leave. I felt totally fine yet nobody was listening to me. In the end (about 6 hours later) a doctor showed up, asked how I was, then said I could go. I was getting ready to walk out so he came in the nick of time! I feel like I'm continuously saying that some doctors and nurses (not all!) don't look at the patient as a person - they just look at the symptoms. This is fair enough if someone wanders in and hasn't had any prior problems. However, with me, it takes forever trying to explain to a random doctor what's been going on. I think I now know my own body and when I'm feeling slightly ropey. I feel that they have to look at the patient as a whole and ultimately what is best for them. I was absolutely determined not to spend any more time in hospital than was necessary but this clearly wasn't a necessity to them. Obviously, I understand they have paperwork to do and such like but STILL. This is the ward that I'll be in after my Op.. I'm not very happy about this as I now think the nurses look at me like I'm a grumpy cow.. Oh well. They know the truth about me then! </div><div><br />
</div><div>So yes.. My Op... It is scheduled for 17th January (two days before Mum's birthday.. Sorry Mum) at 8am (bet you any money it doesn't happen til 5pm). I'm trying not to think about it but honestly I am terrified! I know it's a basic routine thing and I'll be in and out of theatre in an hour but my mind clearly doesn't work like that. I'm getting myself psyched out about it which is NOT good. The only thing I'm looking forward to is the morphine pump - that's always fun. OK, I'm not actually looking forward to it, but every cloud eh? I am seriously crossing everything that I get a single room. I am sick of people on wards saying to me, 'oh you're so young, why are you here?' and having to tell everyone my whole 'story'. Also, there are really strict visiting hours at Wishaw if you're on a ward with other people.. I do NOT like that. Oh yes, one other thing that bugs me SO MUCH is that they come around, turn on the lights, open the curtains etc at 8am! Last week when I was in hospital, I eventually fell asleep at 6.30am so this did not amuse me. It's times like this I really miss The Beatson (they would let me lie in as long as I like.. Ahhhh the TCT - another reason they are great!). </div><div><br />
</div><div>Well, I have bored you all long enough with this health chat. Reading it back it looks more like a rant.. Sorry! Anywho, the festive season has now come and gone, but it was really nice. We had a festive party in Uddy the week before Christmas. My costume idea of a Snowflake fell through so I went for a 'Blue Christmas' - pretty easy for me!</div><div><br />
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</div><div>Our cousins were staying in Coatbridge over Christmas so were round a lot and Granny and Grandpa Macleod were here too. The Brown cousins then came for New Year - the house feels very quiet now they've all gone. We had a bit of a disaster on Christmas Day coming back from church to realise the turkey hadn't been cooking. It was all good in the end though as the turkey was carefully transported to the oven in Coatbridge and brought back to Uddy - it tasted wonderful too! Christmas Day was rather bitter-sweet. James is still very sore and hasn't had much improvement at all. It was sad not to have him at the dinner table and to see him his normal, happy self. </div><div><br />
</div><div>In the week leading up to Hogmanay, I realised that I hadn't completed my one New Years Resolution.. To make a croquembouche! This HAD to be rectified. So, Mum, Auntie Rosemary and I got baking and after a few tries at spun sugar, we perfected it. Here is the finished result..</div><div><br />
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</div><div>We decided to make a petite one - the next time we try it, it will be massive! It tasted great too - honest. On New Year's Eve we had planned to do a Murder Mystery but changed our minds. However, this did not stop us from getting dressed up! Seriously, my family are mental - which is why I love them. </div><div><br />
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</div><div>Celebrating New Year felt rather odd. I found it quite strange as things are so different to last New Year (in a good way! For me anyway). It really made me reflect on everything that has gone on and puts into perspective how much things have changed. So much has happened this past year and even in the week leading up to Hogmanay, there was some awfully sad news. It is difficult to know what to say in these situations as nothing can ever really help. All I want to say is that she will be terribly missed and remembered as a loving, caring and wonderful woman. </div><div><br />
</div><div>2011 was an awfully tough year for a lot of people that I love and I really hope that 2012 is a year of happiness, health and filled with many good things. Even saying that makes me think of all the cringey facebook statuses that appeared on New Years Eve.. I genuinely mean this though! I am going to have a think tonight about what my New Year's Resolutions will be and post later on this week. Suggestions welcome.. </div><div><br />
</div>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com4tag:blogger.com,1999:blog-7612930843901399243.post-46519439320990385442011-12-08T18:02:00.001+00:002011-12-08T18:04:29.097+00:00Blame it on the WeathermanNow, I am not blaming Sean Batty for this current weather situation - this blog title is actually in reference to THE BEST, 90's, fourpiece, denim wearing girlband, B*Witched! I've been humming the song in my head all day. The weather in Scotland is pretty crazy at the moment so our flight to London tonight has been cancelled. I was due there tomorrow morning for an MRI, x ray, meeting with the fertility dude and the prof. It's rather annoying having to miss it as they're all very important appointments. Guess there's not much we can do about it. Stupid weather ruining everything! The storm is making me want to watch the Wizard of Oz, particularly this scene..<br />
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</div><div>I've been feeling pretty rubbish this week, just tired and run down I think. Slightly relieved we don't have to go.. I've not been doing all that much. However, here is a snap of Ruth and I at an event last week to show you my hair..</div><div><br />
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</div><div>As you can see, it is coming in incredibly curly.. I've been getting quite a lot of lovely compliments about it which is nice! One girl even approached me last Friday to talk to me about my hair - very sweet. Typically though, I hate it. Always want what you don't have eh?</div><div><br />
</div><div>Anywho, will leave you with a snap of B*Witched - what babes.</div><div><br />
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<div>I'll be back soon - with Christmas chat no doubt. </div></div></div>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com3tag:blogger.com,1999:blog-7612930843901399243.post-79704079827221803152011-11-24T15:45:00.000+00:002011-11-24T15:45:44.878+00:00Oh hello there!My oh my, it has been some time since I wrote a blog! As I am in today, I thought I should crack on and fill you all in on what's been happening with me. Actually, not much really.. <div><br />
</div><div>Annoyingly, we have had to put Mum's 'hospital packing skills' into practice TWICE as I have ended up in A and E a couple of times recently. The first time was a few weeks ago - I had stomach pains all day and eventually gave in and went to hospital. The ward was great (Wishaw, once again, another ward!) and the nurses were lovely. I had an xray, bloods checked, painkillers and fluids. The next day, the pain improved so I was allowed out (phew). The stomach pain happened again on Monday night, yet this time it was a lot more severe. I haven't had pain like that since the first high dose so it was pretty horrendous. The pain got steadily worse and Mum once again packed a case for me and we headed to Wishaw hospital. Typically, the second we arrived on the ward, the pain disappeared! The nurse clerked me in, I saw a doctor, had my blood checked, x rays done and I was totally pain free! Another doctor came to speak to me and said she wanted to keep me in overnight to observe me. I was determined that I wouldn't stay in as it was Teenie's graduation the next day and had a whole argument prepared as to why I needed to go home. She was very understanding and said as we are sensible (ha) she would let me home - hurrah! She thinks I have adhesions on my bowel which is quite common after surgery to the bowel, and these were causing the pain. She also said this could happen again so I'm freaking out that it will.. Anywho, I'm feeling a lot better today so that is good! I have an appointment at Wishaw tomorrow to see my surgeon so we will be discussing my surgery then. </div><div><br />
</div><div>So, as I said above, yesterday was Teenie's graduation from Caledonian University. She has had a very busy few weeks (Beauty and the Beast at the Kings, Ballet exam, preparation for another dancing show, an essay AND graduation) but it was a lovely day. James wasn't able to make it as his back is still very bad and it felt very odd without him. We're all hoping it will improve as he is so uncomfortable all the time. The grandparents all came down for a few days which was very nice though. </div><div><br />
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</div><div>As mentioned above, Teenie was also in the Pantheon production of Beauty and the Beast at the King's Theatre. I was lucky enough to go twice - which I'm glad about as it was great! The principals were all fantastic, as were the whole cast. I would go again if I could!</div><div><br />
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You can't really see, but this is Rory posing with Teenie on the poster!<br />
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One of Teenie's parts was a 'fork', so this is us doing 'the fork'..<br />
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</div><div>Aside from the above, I don't really think I've been doing much.. I had a lovely couple of days at my cousins in Ellon. It was so nice to be away, I had such a great time. It made me realise that I've not had a holiday for a long time. </div><div><br />
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This is a picture from the longest game of 'Escape from Colditz' EVER. Has anyone else ever played this?! I normally love games but this one, I do not enjoy. Rosanna and I were in a team and won THREE TIMES. Clearly, the hope of finishing the game was an incentive to win.<br />
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</div><div>Last week, I was invited to the Scottish Parliament with the Teenage Cancer Trust to speak to Nicola Sturgeon about the charity. I had a great day and instead of being nervous, actually really enjoyed it. Is that weird?!</div><div><br />
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</div><div>As I have been gradually getting stronger and able to do more, it's making me think about the future and realise that everything is so unsure. I'm starting to feel pressure to figure out what to do and I'm finding it all rather stressful. The littlest thing still stresses me out, so I'm finding this pretty difficult. I know it will take time to figure everything out but I get myself worked up about it quite a lot. </div><div><br />
</div><div>Also, as it is now getting close to Christmas, it is obvious that I'm going to start reflecting on where I was last year. I honestly can't believe it was a year ago - sometimes it feels like a lifetime ago. This time last year, I was so scared, apprehensive and physically shattered. I was absolutely terrified at the prospect of the high dose and honestly didn't think I was going to come home. It makes me feel quite sick when I think about it - probably not a healthy reaction! I guess this time of year will always make me think of where I was at the end of 2010 and make me so thankful that I'm not there now. This year I am determined to have a great Christmas and am probably going to do everyone's head in with my Christmas related chat. If I could have anything this Christmas, it would be that my brother would be back to perfect health and get back to his normal self. James, you are obviously our Tiny Tim. Just a very tall version.</div><div><br />
</div><div>As always, I have rambled enough so I will leave it there. Thanks for sticking with me! </div>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-34126193346287954322011-10-04T08:30:00.000+01:002011-10-04T08:30:07.297+01:00LDNI do realise this post is a bit late, I'm not quite sure why it's taken me so long to write it! A few weeks ago we were back down in London to see the Prof and managed to tie it in with my Willow Foundation (<a href="http://www.willowfoundation.org.uk/Home">http://www.willowfoundation.org.uk/Home</a>) weekend. I chose to take Mum, Rona, Teenie and Ruth to a show (Wicked, obvs) and we managed to do a lot of other things!<br />
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On Friday morning, Mum and I got a very early flight to London and made our way once more to Charing Cross Hospital. It always feels very strange going back there, but in a familiar way. I don't really have happy memories of that hospital so it's never much fun going back. Anywho, we went in to see the Prof and were chatting away as normal. He brought up my MRIs from August and April to compare and see if there's been any change. There was a bit of a fright when he noticed quite a lot of fluid in my back. He quickly ran down to Radiology (after mentioning getting an ultra sound and PET scan) so I obviously started to freak out. He was away for about 20 minutes (longest 20 minutes ever) but came back smiling saying everything was OK. The word 'Phew' does not begin to cover the relief. Apparently I have 're-feeding syndrome' which is quite common in patients who have gone through High Dose chemo. Basically, you don't eat for a month, then you come out of hospital and stuff your face which then causes fluid in the back.. I don't understand the logistics of it but I'd rather have this than anything else! My blood levels (well, magnesium) are still a bit all over the place so he is apprehensive to have my operation before they stabilise. He has delayed this until the New Year which I am totally fine with. After seeing the Prof, I then went to see another specialist who has sent me for a gazillion blood tests which will be repeated in another six months.<br />
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After a horrible panic in the morning, Mum and I were feeling pretty drained so we headed to the hotel. I've never really stayed in a swanky hotel before, but this one was well swanky! So nice. Teenie, Rona and Ruth came later on in the afternoon and we then got ready for a walk to Buckingham Palace, dinner (with Daphne!) and The Wizard of Oz!<br />
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I really didn't have high hopes for The Wizard of Oz, but I was pleasantly surprised. Most folk will know, I do adore musicals, but for some reason have never thought of The Wizard of Oz as one.. Yeah, that sounds daft but the songs aren't really that memorable are they? Well, they clearly are memorable as I was singing along (probs wasn't supposed to be) during the whole thing.<br />
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The next morning, we set off early as Ruth had booked us a manicure with Wah Nails (<a href="http://wah-nails.com/">http://wah-nails.com/</a>). Being a huge nail polish/nail art/nail anything fan, I was pretty darn excited. My nails are now (finally) growing with no ridges on them so this was perfect timing to get them done.<br />
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We then popped along to Liberty's (YAS) and to some of our favourite make up haunts. After all this, it was then time to be tourists again and we went on the London Eye (well, those of us who were BRAVE enough) and a wee river boat. We've been to London so many times and never done this so we were rather excited!<br />
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One of Teenie's great snaps from the boat... Oh, it was raining.<br />
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We were only about a ten minute walk from the hotel so decided to walk... STUPID IDEA. It started to pour. Oh well. We got back, chucked on more make up and some dresses and were ready for Wicked! We met Twee for some dim sum before which was lovely.<br />
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Ali got me obsessed with Wicked years ago when we worked in a hotel one summer. So, it is all her fault I love it so much! This was my third time seeing it but I was so excited for the rest to go as I have talked about it SO MUCH. Third time is definitely a charm as it did not disappoint - we all loved it. I'm so happy everyone else enjoyed it and we were singing the songs all the way home.<br />
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We also managed to fit in the Chanel exhibition at Harrods (if you can go, do. It's amazing - a HUGE 2.55 bag! The dream), macarons at Laduree, lunch in Covent Garden and the big Topshop. All in all, an amazing weekend.<br />
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As you can see, I am still carrying my beloved Mulbers everywhere. I think this bag has travelled everywhere with me this past year. I am not sure if I have told the story of when/how I got it on this blog, if not, I have probably told you to your face (as I have bored everyone with it). This is the moment I opened the beautiful net-a-porter box to find it.. Best. Present. Ever. Thanks Dad :)<br />
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Not the most flattering angle for me, but I feel happy when I look at it!<br />
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I have been doing a lot more recently and definitely building up my strength and confidence. I am now more than six months out of High Dose chemo and I can't even begin to describe how much better I feel. The prof did stress that is is gradual but I'm feeling great! OK, I will stop now - this has been long! Congrats if you got this long.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com4tag:blogger.com,1999:blog-7612930843901399243.post-51813876629781527982011-09-09T17:47:00.000+01:002011-09-09T17:47:03.584+01:00Something else I want to say..MY HAIR IS GETTING SOOOOOOOOOOOOOO CURLY!!!<br />
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That's all.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-36052035079513267832011-09-09T16:21:00.001+01:002011-09-09T17:17:49.560+01:00Everybody loves a CeilidhWell Hi there! It has been a while. I thought I should post a wee update of how the Ceilidh went last Saturday. The day was rather stressful getting everything organised but it seemed to go pretty well! About 200 people showed up and we made over £3,500 for the Teenage Cancer Trust so I was VERY happy with that. This money is going towards the new centre being built in Edinburgh. Everybody that came was on such good form and the dancing was a hoot. Thanks so much everybody for coming and for going for it on the dancefloor! Here are some snaps to show how well it went..<br />
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</div><div class="separator" style="clear: both; text-align: left;">Being shown how to work the sound..</div><div class="separator" style="clear: both; text-align: center;"><br />
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This was near the end - I think they were rather tired!<br />
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</div><div class="separator" style="clear: both; text-align: left;">Clearly, Dad and Uncle James were having a blast. </div><div class="separator" style="clear: both; text-align: left;"><br />
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</div><div>I have SO many people to thank for helping me put this together. Firstly, both of the bands. The Ceilidh band came all the way from Inverness and they were amazing. Four very talented young musicians who were so keen to help and helped the evening go so well! The other music for the night was provided by my chum Andy's band, Hidden Agenda (<a href="http://www.hiddenagenda.info/">http://www.hiddenagenda.info/</a>). I think everyone can agree that they were awesome - most folk had a dance at some point (particularly Jamie and Gordon..)! Next, we have 'Scrumptious' who made the wonderful cupcakes that you can see. Thank you SO MUCH girls for doing that, the cupcakes were amazing! We had a HUGE raffle (which was a bit stressful at the time, but oh well!) and I was so happy so many wonderful companies contributed towards this. There is a list of the raffle prizes on the website (maireadsceilidh.co.uk). Lastly, I have so many of my friends who I want to thank... Bex, Will, Frances, Louise - you guys were so helpful with getting things for me and bringing things that I forgot (ie a moneybox, table cloths, tealights, a top hat etc..). Alice, for driving the band to and from Inverness - you must have been knackered so thanks! Lynsey (and your Dad for piping!), thanks for coming early to help set up and for taking wonderful pictures. It's so lovely to have made a great friend through this TCT stuff. Stef and Tom, you guys have been great. After a totally crap year you both were so keen and supportive throughout it all. Ally, thanks for doing the 'guy' stuff which all of us girls were pretty useless at! Jamie, for designing the website and doing all the 'techy' things! My (very large) family for doing whatever I asked of them! Mum, Teenie and Claire for being around all day and pitching in wherever they needed to be, Dad, Uncle James and Auntie Winnie for being 'on the money', Rona for being a 'raffler' and the rest for being so incredibly supportive. Last, and by no means least, is my right hand woman Ruth. She has gone above and beyond the call of a best friend (not just on Saturday) and I would be totally lost without her. The wee presentation she sorted for me at the Ceilidh just proves how thoughtful and kind she is. Saturday wouldn't have been possible without everything she did to help so, thank you Ruthie. </div><div><br />
</div><div>I have definitely missed people/roles/things/no idea what else out but I really hope everyone knows how grateful I am for the support and help that they gave whilst I was organising the Ceilidh. It was so great to see so many familiar faces and it was amazing how much was raised. </div><div><br />
</div><div>I've been rather busy these past few weeks but shall leave it here for now. I hope everyone has a lovely weekend. </div>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-49747058697629748082011-08-28T20:33:00.002+01:002011-08-28T20:49:24.952+01:00We love a photogenic horseYesterday we all went off to Achnasheen to celebrate Auntie Mina's and Uncle Alastair's 50th Wedding Anniversary. Most of the family were there which was lovely. Unfortunately, James couldn't make it as his back has become worse. The pain hasn't been improving so sitting in a car would be a nightmare for him. He was really missed though and felt very odd without him there. As always, a lot of pictures were taken and I will pop some here to show you all.<br />
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The kids table...<br />
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Granny and I. I am crouching quite a bit here..<br />
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There were a few random Shetland Ponies around the hotel.. I think this picture is my favourite.<br />
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I know this looks like I've put loads of pictures up of the same thing but it was rather funny.. The pony (which we named Toby) decided to enter our family picture and it took quite a while to get rid of him.. It was a total lol though.<br />
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This is the only one Dad made it into..<br />
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Toby then decided he wanted to come into the hotel.. He only made it to the porch.<br />
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It was so nice to see the extended family, a lot of whom I've not been able to see this past year. Everyone has been so kind to me and it was great to catch up.<br />
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We've had a lovely time up north and are going to Edinburgh tomorrow to celebrate Auntie Dianne's birthday. On Friday, Mum, Granny and I went to Anta and then to Dornoch - two of my favourite places!<br />
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On Friday night when Teenie arrived we popped into Tain for dinner. It was delish!<br />
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One last thing.. As I've mentioned previously, Granny lives in 'Hill of Fearn'. This sign is sometimes changed to 'Hill of Fear' and as we were driving past on Friday night someone had changed it! YAS! I was absolutely overjoyed and made Dad stop the car so we could get a snap of this momentous occasion. It was rather awkward to park there as it is at the side of a country road so we tried to be quick. It took Mum a while to take the picture and Dad was getting rather impatient.. My heels were sinking into the grass and there were spiders EVERYWHERE. After about ten minutes, the flash went and we hopped back into the car and started driving off. However, after all that, the only picture we ended up with was this.. THANKS MUM.<br />
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OK, that was a really picture heavy post and rather dull... Soz! Anywho, I'm off to pack my bag for tomorrow. Night all.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-48251392683995353742011-08-23T23:00:00.002+01:002011-08-23T23:06:27.358+01:00M.R... WHY?!I have just read that title back and it reads like a man named Mr Why but it is actually reference to the fact I had yet another MRI last Thursday. I kind of forgot about it and didn't realise until we were driving in that I never phoned to confirm it.. Whoops. However, they just presumed I was coming so I was on the books! MRI's don't bother me now, it's quite nice to lie down and know you can't do anything! Yes, you are normally in a rather small space (that can be rather claustrophobic), the noise the machine makes is so loud (they give you headphones for the radio, this doesn't help) and you can't move for half an hour (annoying if you need to go to the bathroom). They also give you a panic button which I am always so tempted to press... I have restrained myself though. The ladies at Radiology are lovely and one was saying she remembers when I came for my first MRI - oh my how things have changed since then! It feels rather odd talking about that long ago. I remember thinking that it was something pretty routine and did not think it would be anything untoward.. I was a bit out there eh?! Anywho, my lovely nurse at Wishaw called on Friday to say it hadn't been reported but everything looked absolutely fine - so basically, it doesn't look like any tumour is still kicking about in my bowel. Hurrah! My blood is still all over the place (Magnesium fix yourself already right?!) but I think that's to be expected so nobody is worried about that.<br />
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I have had a very busy couple of weeks and I can't even remember what's been happening?! I have a few snaps to share so maybe that would be easier than me trying to remember.. They're in a funny order but who cares about that eh?<br />
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Our lovely Alice has moved up to Aberdeen so we had the girls round for a Chinese (I have had about four in the past two weeks.. No joke), wine, ice cream and Burlesque (the film, not a raunchy dance routine). It was a lovely night and it was sad saying Goodbye to Aldo. She has been absolutely amazing this past year and we're all really going to miss her. I am really looking forward to visiting though - I've not been to Aberdeen in years!<br />
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A party is not complete without trying on wigs yeah?!<br />
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Teenie and I helped Barbara and co at the last minute holiday club.. It went pretty well I thought! I was absolutely knackered at the end of it though!<br />
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Teenie, Ruth and I had another jaunt to Ikea... This time we got meatballs so all is right in the world. I also bought my treasured Chanel Graphite nail polish just before we went so we painted our nails in the food court.. Holler.<br />
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Saturday was a really nice day. As most people know, Teenie has decided not to be a nurse and to go be a dancer instead! So, on Saturday we took her through to sort out her flat in Edinburgh. We kitted out her flat in the morning then went to meet Stef in the afternoon. Stef and Tom had great news last week so we had some celebrating to do! We went to the Udderbelly (VIP hollaaaa) and had some Mojito's and great chat (obviously). Will and co joined which was great fun. After all this hilarity, Ruth and I took Teenie home and went to get the train. It was really sad saying 'Bye' to Teenie. I know Edinburgh is not far away but I've become so used to having her with me all the time. She has been there for me constantly (and without complaint!) this past year and I'm really going to miss having her around. This is one reason why I need to learn how to drive! Teenie, all I have to say is.. BABY G.<br />
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I LOVE this picture! So cute.<br />
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Oh these photo's are definitely in the wrong order.. Sozzers. Last Monday, Teenie and I met up with our favourite babies for a trip to M&D's. Now, M&D's isn't exactly Disneyland but it was still pretty good fun. There is an amazing sweetie shop and the kids lived up to the phrase, 'like children in a sweetie shop...'. To be honest, I think Teenie and Barbara were the worst!<br />
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I'm going away this weekend for my Auntie Mina and Uncle Alastair's 50th Wedding Anniversary and we're going to stay in Fearn again. I am really excited to be up north and seeing all the family. Next week is a big birthday for Auntie Dianne so we will have more celebrating in Edinburgh too! Aaaaaaaaaand after that is the ceilidh! I am really looking forward to it now! Also, if you haven't already, please check out.. <a href="http://www.maireadsceilidh.co.uk/">http://www.maireadsceilidh.co.uk/</a> Any questions, just send me a wee e-mail.<br />
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Today I went dress shopping for all these events and wasn't very successful. However, I am now very tired so I hope I will sleep well tonight! Over and out.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com3tag:blogger.com,1999:blog-7612930843901399243.post-39524903467530563192011-08-06T19:20:00.001+01:002011-08-06T19:23:24.233+01:00My swagger's in checkI cannot get this song out of my head. I apologise if it is now in your head.. If you do not know this song, you're incredibly lucky. Anywho, hello there! Well, I have had an incredibly busy week - well busy for my standards! I have a few more pictures for the wedding for you all to gaze upon.<br />
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This might sound weird but I feel rather chuffed that I managed to last the whole day - and yes, even dancing away too. It was just so much fun. I know I have gushed a huge amount already about it but it just went sooo well! I also felt very honoured being asked to be a bridesmaid, thanks Phil and Jem :)<br />
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This week began with my friend Frances' birthday so we met up at Cafe Hula, had some tapas and a wee glass of wine. Good good.<br />
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On Tuesday I was back at the Beatson to meet Lord Jack McConnell, who was coming to speak to the 'young folk' about the Teenage Cancer Trust. I had never heard of the TCT until I was unwell but now, I cannot say enough good things about them. I really do think they do invaluable work and this is what we had to tell him! He was a very nice man and incredibly personable. He said he had only recently heard of the TCT and is wanting to become more involved. He spoke to us for quite a while and then it was time for a mini photoshoot... Cringe.<br />
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On Wednesday, Teenie, Ruth, Cat and I decided to venture out to Ikea to get some meatballs for dinner. This was an ace idea until we turned up at Ikea and they were having a Crayfish Festival (meaning NO meatballs) - ehhh sorry what?! We were not happy about this. The only thing that would make the situation a bit more bearable would be to purchase a Dime Cake... However, Ikea NO LONGER HAVE DIME CAKES. Well, as you can tell, I was not very happy about this. To ease our pain, we headed over to Xscape for some grub and a shot at the photo machine... If you were a teenager in the late 90's you will remember these machines. I think most of my Saturday afternoons were spent at them.<br />
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Thursday was a HUGE day. Teenie and I went to chuck some stuff in her new flat (which, FYI, is totally gorgeous, near Haymarket in Edinburgh) and Alice came round for dinner. The big news is that.. Drum Roll please.. I HAD A CHINESE TAKEAWAY WAHOOOOOO! This was a rather momentous occasion as I have been on a strict 'pregnant woman's' diet since May 2010. I have been very well behaved with this diet, but there are so many foods I've been craving. Clare and I are going to hunt Glasgow for the best cheese board (any suggestions, fire them my way) and I REALLY want to go to Brel for Muscles and chips.I found a list the other day that Teenie and I wrote while I was getting the High Dose Chemo and I wasn't able to eat. This list is of restaurants that I want to go to.. It's rather long.<br />
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On Friday, Teenie and I met Barbara and the kids and went to the park which was great fun as always. In the evening I met my chums and went to celebrate Ally's birthday. It sounds really sad to say, 'it felt like old times' but it really made me realise how much I've missed over this past year. It felt normal and I didn't feel paranoid that people were looking at me as I don't think I look any different now (I'm telling myself that my hair is a passable length).<br />
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I know this post has been all 'blah, blah, blah' but I think it really shows that I'm getting gradually better each day. A few weeks ago, I could never have imagined doing something every single day so that in itself is an achievement! Also, last week my Magnesmium went down to 0.54 (it's supposed to be around 0.7-1.0) and even though I'm taking the supplements it doesn't seem to be doing anything. So, I conducted my own 'test'. I didn't take the supplements for five days and when I got my blood checked on Tuesday it was 0.65! This is good news as it means my kidneys are going in the right direction! It's still going to take a while for my blood to behave but at the moment, that works for me.<br />
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Now, something I've been planning for quite some time now is my Fundraising Ceilidh for the Teenage Cancer Trust. It's being held at 7.30pm on Saturday 3rd September at the Glasgow University Union. I have a couple of bands sorted thanks to some good friends and I'm now trying to get together raffle prizes. If any blog type folk can think of anything to contribute/know of anyone that would contribute, please let me know! I've spent most of my day sending loads of emails and I plan to phone round places again on Monday. I already have a few prizes from some lovely local business so hopefully I can get a few more! If you have any suggestions/want to come/want to donate a raffle prize, just drop me an email at maireadmacleod@gmail.com.<br />
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Right guys, I think I best be off now! I hope everyone is having a swell weekend.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com3tag:blogger.com,1999:blog-7612930843901399243.post-44325276817626771912011-07-31T20:15:00.001+01:002011-07-31T20:19:35.864+01:00I ain't got a motorboat, but I can float your boatOh hi there! Well, it has been a while! I have been rather busy these past few weeks but thought I would pop up a few pictures of the beautiful wedding I was at yesterday. I was asked to be a bridesmaid by my lovely friend Jemma (who I've known since History in first year and lived with in fourth year) which was so nice of her. A lot of planning has gone into the wedding and it went so smoothly. I went up on the Thursday for the rehearsal then spent the night at Jemma's on Friday night. We were up bright and early on Saturday to get everything ready for the day ahead. The sun was shining (I had sun cream in my first aid kit.. Holler) and it was just perfect. I am totally wiped so I'll just pop up a few pictures for now.<br />
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Jemma looked absolutely beautiful. As you can see...<br />
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I think this one is one of my favourites... Put your hands up!<br />
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I could talk about the wedding for days, so I will leave it here for now (well, until I steal Jamie's pictures). I hope those who were there will get the reference in the title of this post..Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-66292622254302624592011-07-17T20:21:00.000+01:002011-07-17T20:21:05.564+01:00'We can't just stand here, who's got an idea?'I am currently writing this at 8pm on a Sunday night in my bed.. I have been in my bed all day and I'm incredibly bored. My stomach has been very sore the past couple of days and I'm not sure why. Paracetamol doesn't seem to get rid of it so I am currently trying to ignore it.. This plan is not working. It's not dreadful, just an annoying, dull pain. VERY ANNOYING.<br />
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Last week was pretty busy so maybe I'm just completely knackered from that?! Anyway, the obvious highlight was HARRY POTTER on Friday morning. The Brown cousins were down so we all went to see that. Teenie and I gave ourselves Harry Potter manicures.. We were so impressed with our work.<br />
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The cinema wasn't that busy (as we went first thing on Friday morning) which I was quite surprised at. The film was great. I think it was my favourite one from the series. Teenie and I were in tears at various points (sad, sad, sad etc) so I was glad I put on waterproof mascara. I am such a wimp.<br />
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As I mentioned before, Teenie and I went to T in the Park last week. It was so much fun! We spent most of the time celeb spotting in the VIP tent - holla! My best spot was Taylor Momsen - she looked crazy skinny. There was a Rainbow Rooms mini hair salon there and I asked if they would tidy up my hair for me. They were lovely and had me sitting there within seconds! I got a few odd looks from people as they were clearly thinking, 'why is that girl with incredibly short hair, getting her hair cut even shorter?!'. Oh well, I didn't care. At one point Taylor Hawkins from the Foo Fighters came to sit next to me to pose for a photo - I had no idea who he was or why people were fussing around him. I realised after he left..<br />
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After the tour, Teenie and I managed to catch a couple of bands which was great fun - my inner Emo definitely came out. We didn't stay to the end as my legs were about to give way but it was ace none the less.<br />
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Apologies for this rather dull post but I am going to have an early night and hope this sore stomach doesn't keep me awake.. Fingers crossed.Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1tag:blogger.com,1999:blog-7612930843901399243.post-17996361328242248072011-07-11T18:20:00.002+01:002011-07-11T18:23:10.859+01:00Hill of 'Fear'Granny lives just outside a town called, 'Hill of Fearn'. Normally, whenever we visit, someone has painted over the 'N' on the sign turning it into 'Hill of Fear'.. For some reason, I find this hilarious (easily amused). Unfortunately, the 'N' was still present when we were up north. I was tempted to get some paint and do it myself! Probably best I didn't though. We are now back home and it feels like we haven't been away! I'm just going to pop up a few photo's of our time up north, it was so lovely to be away. Granny is doing very well, she'll be running about in no time!<br />
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</div><div>It was great to catch up with family that we hadn't seen for a while (thanks for the amazing coffee cake Carole!). On Thursday (I think), Mum and I went into Dornoch which I LOVED. In one shop there was a whole room dedicated to scented soap and candles.. Totally up my street. We also went to Dornoch Cathedral where Granny and Grandpa got married. It is a beautiful church and I'm glad we were able to see it. </div><div><br />
</div><div>On the Friday before we went up north, Ruth and I went to my friend Lynsey's 20's themed Murder Mystery Party. I've never been to one before so was well excited. It was kind of like a more intense version of 'Mafia' and was so much fun. </div><div><br />
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</div><div>I got a black wig for the party (as you can see.. Duh) and also painted my eyebrows black. I looked well weird. </div><div><br />
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</div><div>In health related news (snore), I guess I'm doing alright. I am still taking Magnesium supplements and am hoping at my blood test tomorrow it will have picked up a bit. I also managed to get day tickets to TITP (from TCT) and am aching all over today from standing for so long. I need to steal Teenie's photo's from that so will put them up soon! The day was totally ace but I will save that chat for later! </div><div><br />
</div><div>This week I don't have much planned. Is it sad if I say it's going to be filled with Harry Potter?! We're going to see the last film on Friday morning (SUPER EXCITED) so Teenie and I are having a Harry Potter marathon this week. As I've been so sore today, I've not really done much at all. There's so many things I've been meaning to do today but I just can't be bothered... Oh well!</div>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com5tag:blogger.com,1999:blog-7612930843901399243.post-73016979408453237572011-07-08T18:13:00.000+01:002011-07-08T18:13:26.187+01:00I can see Granny's houseWhen we were kids, on the way to Granny's we would always compete to see who would be the first to see Granny's house.. This has now become a habit that whenever we are approaching Granny's house we have to say 'it'. I have had such a lovely week here and for now, will just pop some photo's up of Granny's garden. I have taken so many so it's just a few at the moment!<div><br />
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</div><div>Isn't it beautiful? I love being here. Last weekend the weather was gorgeous - bit too warm for me really! </div><div><br />
</div><div>Also, here is a picture of Fearn Abbey, the church where my parents were married. It is a lovely building. </div><div><br />
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</div><div>I have so many more photo's to share but I said I'd help Mum with dinner so I best be off!</div>Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com2tag:blogger.com,1999:blog-7612930843901399243.post-61469502669849892672011-06-29T12:38:00.000+01:002011-06-29T12:38:42.871+01:00It's too darn hotI have come to the realisation that I talk about the weather A LOT. Not in general conversation I don't think, but clearly I do here. Maybe because I always think of song titles to do with the weather?! Anywho, it was horrid when we left Glasgow on Sunday and when we arrived in London it was a total heatwave! Apparently it was hotter than the Caribbean.. As you probably know, I hate the heat so hadn't really packed for this. Oh well. I also loaded up on the sunscreen (as I am doing daily, even if I don't leave the house!). It was lovely to see Daphne again and she very kindly put up with us again! The next morning we were up bright and early to see the Prof and made our way to Charing Cross. I find it strange, that even though I've not been to London for two months, it feels like I've never been away. Very odd indeed. Anyway, we were at the hospital quite early so the Prof took us in straight away and was as positive as ever. He said it is great news that my HCG has remained below 5 since November and this is a very good sign. However, we are not to become too reliant on my HCG marker, as my tumour did behave rather unusually. He said that my hearing will not improve, but I would probably not benefit from a hearing aid at the moment. His specialist nurse, Sarah, was also there and kept on saying how much she loved my short hair! Quite a few people have said that I really suit it like this and I'm not sure if people are just being kind or genuinely mean it! I do quite like it, but I miss it being long.. We chatted for a while and I then went for a Chest X Ray (just protocol apparently). I have to make another appointment with him at the end of August/beginning of September. All in all, he was incredibly positive. I really like going to see him, he always answers every question we have (which is normally a lot) and never shies away from the truth. He has always been very honest with me which I really appreciate too.<br />
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After this, Dad and I headed to the V&A Museum for a look about. I was desperate to go to the Grace Kelly Exhibition there last year but whenever we booked tickets, I was always in hospital! How annoying. At the moment, there is an exhibition on called, 'The Cult of Beauty', which focuses on the artists of The Aesthetic Movement in the late 19th century. I don't know all that much about art, but I really fancied seeing this one. Tickets were £12 (what?!) so I thought I'd chance it, and see if I could get a discount with my disabled badge.. Turns out, you get in for free with 'two carers' if your flash your badge! So Dad (my carer..) and I got in for free - that was pretty good! I really enjoyed it and noticed that in a lot of paintings, many of the girls had ginger/red hair. One quote that was all over the exhibition was that the Aesthetic Movement was, 'Art for Art's Sake' - basically art existed in order to be beautiful. So, in essence, this means Rossetti, Whistler etc considered red hair to be beautiful - hurrah! I've never really liked my red hair, but I guess I just got used to it. I have definitely missed it since being bald though! I think it's only on for a couple more weeks, but it was really good. By this point, I was feeling rather tired and my feet started to hurt (stupid flat shoes) so we would look at a few galleries, sit, look at a few more, sit, look at some sculptures, get an ice tea.. Well you get the jist. After hitting the gift shop, we decided it was about time to go to Heathrow so we had plenty time to get dinner before the flight home. I loved the V&A, I would definitely go back again and DEFINITELY wear trainers.<br />
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My energy has improved so much - I would never have been able to go around a museum two months ago. I am finding as the weeks go by, I am able to do more and more. I find this prospect rather exciting as soon I will hopefully be able to do things that I used to do all the time!<br />
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On Monday it was James' birthday (19 years old.. Scary). Poor James isn't too well and constantly in a lot of pain due to a slipped disc in his back, so he couldn't do too much. Last night we went out for dinner to Mother India's Cafe and Teenie and Mum made an amazing cake for him..<br />
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The enthusiastic cutting of the cake..<br />
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This is a rather cringey photo of myself to show how long my hair is!<br />
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I'm not doing too much today - just tidying up my room (kind of..) and listening to some music. I went on a bit of CD spree the other day so I'm mixing it up with Beyonce, Bon Iver and The Pierces.. Years ago, Clare and I went to see Albert Hammond Junior and The Pierces were supporting him - I remember really enjoying them. Clare reminded me of them again recently so I thought I'd give their album a listen, it's pretty good so far. Here is a picture of the best day of Clare's life..<br />
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AHJ doesn't look very happy to be with us but I'm sure he's overjoyed on the inside.<br />
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Tonight I'm off to the theatre with Teenie and my chum Gavin so that will be great fun. I also have a 20s themed Murder Mystery Party on Friday which I am very excited about. I have a new wig for the occasion but need to get my costume sorted. On Saturday, Mum, Teenie, Ruth and I are going up to Fearn to visit Granny as she's just had her hip done. The Operation was last Tuesday and she has done remarkably well since then. I can't wait to go up and visit her, we've not been up north for so long. While we're up there, I hope we will be able to see some family and friends too.Well, I'm off to make some lunch - Happy Wednesday!Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com4tag:blogger.com,1999:blog-7612930843901399243.post-41456708284249055482011-06-26T14:38:00.001+01:002011-06-26T14:38:48.719+01:00Plane plane go awayI am currently drinking berry tea and listening to Elaine Paige on Radio 2.. However, I am supposed to be getting ready to go to London for the night. I cannot be bothered AT ALL. I have an appointment with the Prof tomorrow morning - if only I could have a check up through Skype. Unfortunately not. We have a list of questions to ask but I think it is literally just to see how I'm doing. I am feeling, physically, a lot stronger and am managing to do more by myself everyday (except this morning, I couldn't move from my bed). I am trying to do more walking so I am slowly building up my strength. Some of the family came round on Thursday night and each person commented on how long my hair was - yaldi!<br />
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Anywho, I best be off - just thought I'd post a wee update!Maireadhttp://www.blogger.com/profile/05738999272753621915noreply@blogger.com1